post op day 1

Post op day one.  May 22

    Not even 24 hours post op and they have moved her from the PICU.  One of her Chest tubes came out as well as one of her IV's and her catheter.  the Dr's say she is doing extremely well.  She is now in an intermediate care room or the step down unit to the PICU.

    She is still on oxygen and her sats are reading high 90's which is a first for her even on oxygen,  last night she was satting at 100% we had to take a picture, who knows if she ever will again in her life.   She is hooked up to an external pace maker which kicked in a few times today.  They did place internal pace maker wires when they did the surgery, but did not put in a generator.  The wires are there so that if down the road she needs them, the operation is quite minor to place the generator.

Her dose of morphine is rather low but she seems to be tolerating her pain well.  I frequently ask her if she is sore and her response is usually no.  Sometimes she points to her chest and gets sad and says that she is sick.  She takes very frequent naps, she will stay awake for about ten mins and then tell me she is sleepy.

Hannah came for two visits which really lifted Lily's spirits.  She sure loves her sister a lot.  She wanted to give her lots of hugs and kisses.  She blew Hannah about one hundred kisses.  Grandma and Hannah have been spending lots of time together so that Justin and I can tend to lily.   I feel bad being away from Hannah so much even though she won't remember.  Hannah is a very non cuddly baby which doesn't help how I feel.

Lily was able to start eating solids and has tolerated all her food well.  She is taking lots of sips of apple juice and water and frequently asks for ice cubes to eat.

I feel so greatful and lucky that she is doing so well, and pray that she will continue to make positive progress.